December 16, 2009

We started off our day dropping Alyssa off at school then heading down to Children's. We arrived about 9:15 a.m. for bloodwork. The fingerstick was done about 10 a.m. Got her counts back by about 11 a.m. and her hemoglobin dropped yet some more so we for sure had to stay for those. Her platelets were higher than Monday because of the transfusion but were still low. They weren't low enough for a transfusion. Her ANC seems to be climbing which is great news! The blood finally arrived and the transfusion began just a few minutes after noon. The entire time we were at the clinic Trystan's temperature was elevated, but not high enough for her to be hospitalized. Had her ANC not been coming up she would have for sure had to stay. The hemoglobin transfusion went well other than the temperature. We came home knowing that if her fever went up another degree we would be right back down in the er. Just as soon as Tracy carried Trystan into the house she got sick! I took her temp within the half hour of being home and it was normal and has been normal all evening! Praise God! Hoping that her temperature stays down.

Tomorrow she'll go to her second physical therapy appointment to teach her how to walk with her crutches. She did walk a little on Monday but was very weak from her counts being so low. We have practiced the last two days here at home. She is only allowed to put 50% weight on her right leg; therefore, she needs to be shown what 50% feels like. Trystan was so excited to show her daddy and sissy that she could walk with her crutches. I stay behind her holding onto her waist so she doesn't lose her balance and fall or put too much weight on her right leg. Tracy, Alyssa and myself are so very proud of her! This is just another step closer to Trystan being able to walk, run, jump, skip, etc!