December 11, 2009

Today was an interesting and extremely frustrating day. This morning Tracy took Alyssa to school while I took Trystan for bloodwork in Maryville. We arrived in Maryville and ended up having to wait almost an hour before being called back. Once back there we were seen by someone that was filling in for one of the regulars. She did her finger stick and I asked the woman if she was going to take to pedi-tubes and she told me they only need to take one. I then proceeded to tell her that they normally take two. She insisted that for a CBC only one was needed. A little before 2 p.m. we received a call from the clinic that the lab had called and they didn't have enough blood to run the CBC! She proceeded to tell me that I would have to run back to Quest for another blood draw. We drove all the way back and got there right around 2:30 p.m. and were out and back on the road to come home by 3 p.m. Poor Trystan not only had to have a finger stick this morning but also an arm stick this afternoon. Didn't think we would know what her counts were until Monday but the on-call doctor from Children's called about 5:45 p.m. tonight to give us the numbers. Her platelets and hemoglobin are continuing to drop. They are low but not low enough for transfusions at this point. Her white blood cells and ANC are dangerously low. We are to continue her shots through the weekend and report back on Monday for bloodwork. This evening my mom came over and sat with the kids so Tracy and I could go out for dinner together.