Today was a great day! Trystan and Alyssa had some gift cards and spending money from birthdays, etc. and since Trystan's white cells were good we did some shopping today. It is small things like this that make the good days extra special.
We will be going to have counts again tomorrow morning in Maryville and then heading down to St. Louis to meet with the surgeon. If Trystan's counts are good enough for chemo she should be admitted for treatment on thursday. She will then be in the hospital from July 16th through July 21st.
Tuesday, July 14, 2009
Monday, July 13, 2009
July 13, 2009
Alyssa and I took Trystan to Maryville for counts this morning. We just received a call from the doctor's office letting us know that her hemoglobin is great, white cells are good, but her plateletts are continuing to drop. They are not yet low enough for a transfusion but not high enough for chemo. Therefore, she will not be admitted tomorrow morning for treatment. We are to discontinue her "superhero" shots because her white blood cells are doing o.k. Wednesday will be a busy day for us. We will have to go for counts first thing in Maryville, then head over to see the doctor that will be performing Trystan's surgery. If Trystan makes counts on wednesday, she will be admitted for chemo treatment on thursday.
Sunday, July 12, 2009
July 12, 2009
Alyssa and I went to church this morning. Then we went grocery shopping at Wal-Mart. Trystan and Tracy stayed at home. We will go for counts tomorrow to see if she will be able to be admitted tuesday for her last treatment before surgery.
July 11, 2009
Today was again a pretty good day for us. Trystan still seemed to be a little tired yet today.
Friday, July 10, 2009
July 10, 2009
Today went pretty well again for us. Trystan seemed to be getting more energy late in the day. I sure hope that this is a sign that counts are on there way up.
July 9, 2009
Well, this morning after we dropped Alyssa off at Cheer K Camp we headed for Maryville to have Trystan's bloodwork done. She has been tired all day again, so we were not expecting very good news when the doctor's office called. The doctor's office told us that she didn't make counts for treatment on Monday. Her white blood cell is not bouncing back like after the past short treatments. The good news is her hemoglobin is up and her plateletts are still good. We have to continue the shots through the weekend. We also got a call from the surgeon's office to come in next week Wednesday to go over scans and begin talking about the surgery.
Thursday, July 9, 2009
July 8, 2009
Today went pretty good for us. Trystan has been very tired, probably from her counts being low. Tomorrow she will have counts done to see if the transfusion has raised her hemoglobin and if her plateletts and white blood cells are bouncing back yet.
Wednesday, July 8, 2009
July 7, 2009
We had to be at the clinic in Children's Hospital at 10:30 a.m. It was a slow start. We weren't called back until almost 11 a.m. Her port was accessed by 11:30 a.m. At that time they took blood for a CBC to be run. We had to wait for that to come back hoping that her hemoglobin had come up and she wouldn't need a transfusion. But, it came back and the number had actually dropped so she deffinately had to have the transfusion. The transfusion was started by 12:30 p.m. and was to last two hours. It was finished by then and as soon as the transfusion was finished they flushed her port and deaccessed her and we were free to leave. Poor thing thought she was finished but when we got back to the car Tracy and I had to give her her super hero shot in the parking garage. After that was all said and done we were on our way home and she was really hungry!
Alyssa was still able to attend Cheer K Camp and later in the day got to go swimming at the Greenville public pool with grandma and Kortnie.
Alyssa was still able to attend Cheer K Camp and later in the day got to go swimming at the Greenville public pool with grandma and Kortnie.
Monday, July 6, 2009
July 6, 2009
Alyssa started Cheer K Camp today and will have it all week. Trystan was finally old enough to do it this year but because of her leg she will have to wait yet another year to do it. After dropping Alyssa off at camp, Trystan and I headed down to Maryville for counts. Early this afternoon we received a call from the doctor's office that her Hemoglobin is low and will have to come in to the clinic tomorrow for a transfusion. Please pray that the transfusion goes well and she doesn't develop a fever. Also, please pray for John, Tracy's father. He is having surgery tomorrow morning on his hip.
July 5, 2009
We came home this afternoon from camping. It was nice to be home. Trystan didn't get sick at all today!
I hope everyone had a happy and safe 4th of July holiday.
I hope everyone had a happy and safe 4th of July holiday.
July 4, 2009
Trystan woke up this morning hungry and ate a pretty good breakfast. We thought we were in the clear of her being sick, but late morning she did get sick. Soon after getting sick she was hungry and ate well the rest of the day without getting sick.
We had to spend the bulk of the day inside the camper because of all the rain. As soon as it stopped Alyssa got on her new bike she got for her birthday, I got on my bike and Trystan got in her bike cart and we went bike riding. It was nice to get out of the camper!
We had to spend the bulk of the day inside the camper because of all the rain. As soon as it stopped Alyssa got on her new bike she got for her birthday, I got on my bike and Trystan got in her bike cart and we went bike riding. It was nice to get out of the camper!
July 3, 2009
Happy 9th birthday Alyssa!!
Trystan woke up this morning and got sick, but throughout the day seemed to feel a little better. Our friends took us out on their pontoon boat early evening and the girls loved it! Thanks Keith and Anita!!
Trystan woke up this morning and got sick, but throughout the day seemed to feel a little better. Our friends took us out on their pontoon boat early evening and the girls loved it! Thanks Keith and Anita!!
July 2, 2009
Today was a pretty good day for Trystan. Although she didn't get sick today she didn't feel the best. We are leaving today to go camping in the camper for the holiday weekend. This is one thing that both of our girls love to do...camping.
Thursday, July 2, 2009
July 1, 2009
Trystan made it all through the night without getting sick! However, she did end up getting sick about 8:30 this morning. We also got to come home today and were home by about 4 p.m. We were all glad to be home. Trystan ate a good supper and also had a snack later and was able to keep it all down. Hopefully she will not have the delayed nausea and vomiting like after the last short treatment.
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